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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@doctorbri

I think I might agree. I have tried so many things with my BFS over the last 11 years. I am now convinced that intravenous acyclovir is the way forward as I was with a herpes carrier 11 years ago. Have you heard of any cases of BFS treated in this way yet?

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Replies to "I think I might agree. I have tried so many things with my BFS over the..."

That’s my next step to see if Dr will do a trial of antiviral. There has been research that this may help long COVID in some cases. I am desperate. Can’t exercise due to muscle pain after and fatigue! Sits like I’m doing more damage to muscles when I exercise and now my muscles getting weak. Still searching for a cure. Mentally hard to accept that this is life now.