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Benign fasciculation syndrome (BFS)
Not sure if this is the right place to ask this, but I'm really not sure how to interpret what's going on. I'm 40, have had random twitches now and then around my body for a few years and ignored them. Mentioned it to my Doctor last year during my annual routine health check and she said it's likely just stress and ignore it. Got sick a month ago, high fever, headache, dizziness, chills, and near constant twitching in different spots all over my body. My knees were going crazy and my biceps were twitching, I felt like my body was malfunctioning. I was also itching all over and my extremities were aching, especially in my feet and hands, but when I pressed or touched my feet or hands, there was no pain spot.
Two weeks after I got referred to a Neurologist who checked my strength, did not do any EMG or MRI, no other tests, just testing if I could physically push back or feel anything below my knees and past my elbows. He laughed and said I have benign muscular fasciculation syndrome and gave me some Xanax. I went for a second opinion and got the same diagnosis, benign muscular fasciculation, and was asked to return after a few months to check on me. The twitching is not as constant as before, but it's still happening, arms, lower and upper legs, knees, neck, shoulder, chest, they last a few seconds and stop. I can't sleep, the itching and the twitching wakes me up at night. The twitching does not go away when I move the muscle, it keeps twitching. Has anyone else ever had anything like this? If so, how or did it resolve?
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I was diagnosed with BFS which I think was caused by my second Pfizer vaccine, though that will never be acknowledged.
Since the vaccine many have later been diagnosed with cancer so maybe the body reacts differently and the immune system used for Covid has somehow changed the fighting of cancer cells.
May I ask what type of cancer?
No specific one, but there are articles to read online
‘Do COVID-19 vaccines cause turbo cancer’
My husband 70 yrs old had the vaccine and 2 boosters and I did not have boosters; 3 months ago he was diagnosed with stage IV primary rare liver cancer, (no underlying cirrhosis), he was fit and healthy and now he is going to a hospice.
Many acquaintances tell me of cancer in the family since the pandemic and that made me think there could be a connection.
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2 ReactionsI think I might agree. I have tried so many things with my BFS over the last 11 years. I am now convinced that intravenous acyclovir is the way forward as I was with a herpes carrier 11 years ago. Have you heard of any cases of BFS treated in this way yet?
I’ve had similar symptoms since contracting oral HSV-1 5 months ago.
My newest neurologist put me on carbamazepine, which helped, but I feared my hair loss was perhaps a side effect from the drug. I stopped taking the drug and the twitching came back.
Hi, I am having very similar symptoms, it started with burning hands and feet(1-2 years ago), extreme fatigue, body aches (20+ years) and 3 months ago the twitching started.
Did you recieve a diagnosis?
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1 ReactionI have twitching in both calves and sometimes thighs and butt. IDK how they come to conclusion that it’s benign. I most likely have long covid. Started 5 months after my infection with burning and PEM and the the twitching started (daily). I’ve had a brain MRI that shows innumerable white matter hyper intensities that neurologist initially said can’t say for sure what this is, the next Appt blamed it on hypertension, was dismissive and gave me a Benzo too. I was so angry. The fact is whatever I have is progressive and has been blown off. Just want to hand me Gabapentin and other drugs. How bout start with a diagnosis first ! Bad medicine. The only thing that helps is hot baths or heat pads.
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1 ReactionThat’s my next step to see if Dr will do a trial of antiviral. There has been research that this may help long COVID in some cases. I am desperate. Can’t exercise due to muscle pain after and fatigue! Sits like I’m doing more damage to muscles when I exercise and now my muscles getting weak. Still searching for a cure. Mentally hard to accept that this is life now.
I had a very similar presentation. Burning hands, feet, face and finally muscle twitching in addition to internal tremors. It got really bad and most things are much better now after 9 months of scary symptoms. I am on a benzo and many people who n Benzos experience these symptoms.