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Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Autoimmune Diseases | Last Active: Dec 25, 2023 | Replies (225)
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@wieczorkemaria

Good Morning, I have had raynauds for about 20 years. Only getting worse. Mornings are very bad. Fingers get numb at work and difficult to type. Magical hands I call it. My fingers turn anywhere from red, white, grey and purple. So annoying. Numbness and tingling in fingers and toes. I've tried the norvasc for so many years but have major systemic issues and my rheumy switched on my BP meds to procardia to help with the raynauds. It got better at first and then back to normal. cold and hot water is a no no. Warm is best. I use the instant heat pads at work and also use the fingerless gloves. It really never goes away.

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Replies to "Good Morning, I have had raynauds for about 20 years. Only getting worse. Mornings are very..."
nmc7 | @nmc7 | Dec 1, 2023

Weic,
Thank you for your input. What heat pads specifically and where can I buy them? Did you go to a cardiologist for Procardia who treated you for Raynaud's? Or has a rheumatologist helped you with possible remedies? My daughter has been struggling with freezing and burning in her hands for years with no relief. Are there no gloves made specially for Raynaud’s outside? I just can’t believe there is so little information on such a debilitating condition. Thank you for any guidance to meds, gloves, shoes, and special fabrics in sweaters or jackets or jumpsuits, etc. that make this tolerable. NMC

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kelvinthomas | @kelvinthomas | Dec 25, 2023

My fingers do the same changing of color (white, gray, ruby red). You are so right, stay away from very cold or hot water. I took gloves off in -15 degrees F and couldn't get back on. Also had taken boots off as water got into boots. Couldn't get them back on. Got to cabin and used Hot water. Pain was unbearable I've had Raynauds for 55 years.
1. NIH, etc. feel it's genetic.
2. Toes tingle mostly at night.
There is no known cure. The tiny veins in fingers and feet are just there. Keep stress levels down. I know how you feel.

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