Connect
Comment receiving replies
I think it’s a wonderful thing that you feel up to getting back out. I am also 64 and PMR has definitely impacted my desire to go just because when I started tapering prednisone my pain came roaring back. My rheumatologist and I are discussing my options but I think “feeling” like going out again is a great sign of healing. Good luck with reducing Actemra—sounds like you could taper that too. Blessings!
Replies to "I think it’s a wonderful thing that you feel up to getting back out. I am..."
"Feeling like doing something" is a great sign of healing. That is so true. I fell into a pattern of "taking it easy" for fear of having a flare. I was telling myself that I can't do anything ... it became my lifestyle to do practically nothing that I enjoyed simply because I enjoyed doing it. I kept working out of necessity but that was exhausting. My quality of life wasn't good.
Now I am discovering what I can still do. I feel like a kid again learning to do things for the first time. I'm almost 70 years old so I know I will never be a kid again. I'm being "supervised" like a kid by a physical therapist who thinks I'm stubborn. She keeps telling me "if it hurts don't do it" but I tell her it doesn't hurt.
It does hurt a little bit but I expect it to hurt. A good night of sleep takes care of the muscle soreness. I know my adrenals are working and my cortisol level is good.
Connect
I agree with you regarding the fact that "feeling like going out" is a sign of getting better. At the moment I am on 40 mg Prednisolone (GCA relapse) and will soon start also to have Actemra. I am feeling so very much better with the treatment and have actually been "getting out" quite a lot over these past few weeks. I do hope you soon will feel the same way. Good luck with it all.