Small Fiber Neuropathy

I want to throw some questions out there to anyone. I have Small Nerve Fiber with no known cause yet. It is non-length dependent. I will repeat what happened to me. I woke up two days after I retired from my job and I had pinpricks allover head to toe and in my eyes. After many tests I then had a skin biopsy and that was the diagnosis. I asked the neurologist how many of his patients started out like I did. He said none its rare. So I started getting this pressure in the lower back of my head or neck that comes and goes but I had it in the front of my neck once. That was the worst. I felt like I was being choked. With the pressure in my neck my blood pressure goes up. I saw a neurosurgeon and he looked at my MRI with and without contrast. He says that the severe stenosis that I have is on the sides of my neck and that is not causing the pressure. I also woke up with pain that went from my left hip all the way down my leg. I turned over to my right side and it didn't go away for awhile. I had one other weird thing happen. I noticed a sharp feeling near the beginning of my left under arm closer to my right breast. Well I went to get ready for bed and I put my pjs on and I dropped something on the floor. When I went down to pick it up I had very sharp pains going down the right side of my breast. I am thinking nerve pain. I just don't know. I will be checking with the Doctor on these two things and the pain down my leg. I don't know for sure that is sciatica. I am more concerned with the pressure in my neck and the pain on the right side of my breast. I would love to hear from anyone who has experienced any of those things. One thing I did ask about was to an ARNP in gastroenterology. I do have chronic silent reflux and chronic gastritis and I read that some people can experience pressure in the neck. She said that she does have patients with that but when I told her my blood pressure goes up with it she started talking about nerves in the neck. I know they are all over our bodies. The pressure is the thing that bothers me the most right now. I appreciate any comments.

What is EB-N6?

I have not had my small vessel peripheral neuropathy formally diagnosed yet, but it started after I had COVID in April 2023. It lasted around 4 months and would flare up (palms would itch) when I was stressed. I had my Covid vaccine 3 weeks ago and it’s back and actually worse than the first time. Maybe it’s from Covid?

I have not had my small vessel peripheral neuropathy formally diagnosed yet, but it started after I had COVID in April 2023. It lasted around 4 months and would flare up (palms would itch) when I was stressed. I had my Covid vaccine 3 weeks ago and it’s back and actually worse than the first time. Maybe it’s from Covid?

I want to throw some questions out there to anyone. I have Small Nerve Fiber with no known cause yet. It is non-length dependent. I will repeat what happened to me. I woke up two days after I retired from my job and I had pinpricks allover head to toe and in my eyes. After many tests I then had a skin biopsy and that was the diagnosis. I asked the neurologist how many of his patients started out like I did. He said none its rare. So I started getting this pressure in the lower back of my head or neck that comes and goes but I had it in the front of my neck once. That was the worst. I felt like I was being choked. With the pressure in my neck my blood pressure goes up. I saw a neurosurgeon and he looked at my MRI with and without contrast. He says that the severe stenosis that I have is on the sides of my neck and that is not causing the pressure. I also woke up with pain that went from my left hip all the way down my leg. I turned over to my right side and it didn't go away for awhile. I had one other weird thing happen. I noticed a sharp feeling near the beginning of my left under arm closer to my right breast. Well I went to get ready for bed and I put my pjs on and I dropped something on the floor. When I went down to pick it up I had very sharp pains going down the right side of my breast. I am thinking nerve pain. I just don't know. I will be checking with the Doctor on these two things and the pain down my leg. I don't know for sure that is sciatica. I am more concerned with the pressure in my neck and the pain on the right side of my breast. I would love to hear from anyone who has experienced any of those things. One thing I did ask about was to an ARNP in gastroenterology. I do have chronic silent reflux and chronic gastritis and I read that some people can experience pressure in the neck. She said that she does have patients with that but when I told her my blood pressure goes up with it she started talking about nerves in the neck. I know they are all over our bodies. The pressure is the thing that bothers me the most right now. I appreciate any comments.

@rnlorena I also have Idiopathic Non-Length Dependent Small Fiber Neuropathy. I was diagnosed about 2 years ago. My symptoms are burning pain, tingling, numbness in both feet (worse in my right). It is quite frustrating doing all of the testing only to find out that they don't know the cause. I also have Crohn's disease which is an autoimmune disease and I feel like it is the underlying culprit. I hope you find some answers. You definitely need a Neurologist you can trust and who listens to you. Same goes for your Gastroenterologist