← Return to Arikayce Approval


Arikayce Approval

MAC & Bronchiectasis | Last Active: Feb 23 6:12am | Replies (36)

Comment receiving replies

Hi Lilianna: I just read your post and have some questions about Amikacin IV which my ID and Pulmonologist suggest I do...MAC and bronchiectasis with two cavities. I know you said three times weekly, but was that once a day...and did the side effects go away after a few hours. I currently have no symptoms of any of this and while I want to reduce-eliminate the cavities and have negative sputum, I'm nervous about side effects and having to function at work while on this IV medication. Any suggestions would be most appreciated. Thanks

Jump to this post

Replies to "Hi Lilianna: I just read your post and have some questions about Amikacin IV which my..."

I was on the inhaled Arikayce daily for probably two years and had no substantial bothersome side effects . I am retired but probably could have been ok at work while on it. Good luck! Arikayce does its job quite well. Irene5

I was on Amikacin IV MWF for 12 weeks. In week 5, I got dizziness (could not drive for a few days). Dr cut the dose by 20% and I was able to complete the treatment. I had/have Mac + cavitation.

Hi pattysyarns, my experience with working while on IV Amikacin was fine, once I had recovered enough to go back to work. My ID doc recommended one month of IV Amikacin along with the usual azithromycin, ethambutol and rifampin due to having a small cavity with MAC. I declined IV in favor of inhaled because I didn't want to be walking around a medical center with a PICC line. I declined the ethambutol because I had been on it twice before and I didn't want to risk the vision impairments (my mother became legally blind due to this med). Unfortunately, three months later, I ended up admitted for five days because the treatment didn't work and the cavity was now large. Subsequently, I was on IV Amikacin for six months (until I developed tinnitus), and the ethambutol. After six weeks on sick leave (I was too sick and weak from pushing it at a new job), I did six weeks on halftime, then was ok to do a 40-hour work week. In retrospect, I should have done what ID recommended to begin with, but I was more concerned with appearances and perception of health and didn't realize I could get sicker. Everyone may have a different response, but I hope that sharing my experience helps.