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Anyone had nauseous, gas burping as symptoms for NETs?

Neuroendocrine Tumors (NETs) | Last Active: Dec 1, 2023 | Replies (31)
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@pavlina60

The most efficient ( in my opinion) diagnostic tool for NETs is Ga-68 Dotatate PET scan. But, a caviat - it detects functioning NETs (secreting Serotonin), because it relies on these receptors.
The usual F-18 DeoxyGlucose PET scan is the first " line of defense", as it shows organ abnormalities due to cancer cells absorbing radioactive glucese at a higher rate

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Replies to "The most efficient ( in my opinion) diagnostic tool for NETs is Ga-68 Dotatate PET scan...."
willam | @willam | Nov 29, 2023

Thanks so very much for your response. I can empathize with you facing two cancers. I am a breast cancer survivor -including with the joys of chemo.
Which blood tests of the one you listed were abnormal for you? Where was your primary tumor?

I had both a fdgpet and dotatatepet--both clean. However, at Mayos request I did the wren laboratories Nettest blood test-three times-it said I had aggressive neuroendocrine cancer. Both the NIH and Moffitt Cancer Center confirmed the accuracy of the nettest in clinical studies. This was in 2019. I just had a clean abdominal mri last month. But over the past two months I have a lot of nausea, gas and burping-all very unusual for me.
It is very stressful--I have a teenage son who needs me .

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