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DiscussionAnyone have Primary Aldosteronism (Conn syndrome)?
Diabetes & Endocrine System | Last Active: 9 hours ago | Replies (21)Comment receiving replies
Replies to "Anyone else struggling with Hyperaldosteronism or Conns syndrome. Sadly ,now due to complications I have permanent..."
In 2022 I suddenly started having high BP -always had very low BP), fatigue, sense of thirst, frequent urination, all the good stuff. For 2 years, doctors at UCHealth (where I was being treated for breast cancer) claimed it is my anxiety + reaction to therapy. In 2024 a good cardiologist suspected PA, and after all tests I was diagnosed with PA in Feb. 2024. CAT scan found no tumors, and I have postponed AVS until I speak with a nephrologist too. 100mg Spironolactone daily: fixed potassium levels, no high blood pressure, all good with urination etc. My limited experience gives me the impression of most specialists are still in the dark about the disease (so, not comprehensive testing or medical exploration), and insurance companies are happy to oblige. Good luck with your journey, and I wish you the best.