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PMR, prednisone and bone health: Anyone taking Prolia?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 2 7:20pm | Replies (25)Comment receiving replies
My endocrinologist put me on Fosamax when I first started out with 80 mg. of Prednisone. He, rightfully, thought that I would not be on the Prednisone forever and I could easily get off of it. He did not want me to take either 6 or 12 months worth of a medication. Well, lo and behold, I am still on the Fosamax after almost 4 years of Prednisone. I am down to 11 mg.
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"He, rightfully, thought that I would not be on the Prednisone forever and I could easily get off of it."
I'm just wondering why your endocrinologist thought this. I didn't see an endocrinologist until I had been taking prednisone for PMR for 10 years. I was told it would be extremely difficult to taper off and I may need prednisone for the rest of my life. My endocrinologist said as long as I still needed prednisone for my rheumatology condition, there was nothing she could do. She referred me back to my rheumatologist.
I never had bone loss problems while on prednisone. If anything, I had too much bone especially in my lumbar spine. My dexa scan result was a T-score of almost +5 in that area. When they looked at my knees, I had bone in soft tissues where bone wasn't supposed to be!