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@delia74

Thank you for replying and sharing your experience.
It's my understanding (from research that I've done) that my situation of Complex Regional Pain Syndrome has no "cure" and that basically I'm doomed to continue suffering with the 24/7 Pain Level 5 to 6 DAILY, but can reach 8 to 9 ou of 10. CONSTANT burning nerve pain that has affected my life negatively. Physically, emotionally, psychologically....All resulting from a horrid fall onto a concrete floor that traumatized my entire body but most specifically my ENTIRE left side from foot, leg (and knee), thigh, whole arm and shoulder...All areas have healed to a large degree, via OT and PT, but meniscus tear in knee and the damage to the ankle still affect me constantly. Yes, nerve damage exists. There's so much more, but suffice it to say that I am depressed over the fact that there is not much offered in the way of relief. I do NOT want injections in my spine since I have serious problems with the entire spine, a bulge in the sacral area and osteoarthritis. Lots of fun!
Tens has not been effective. I was told by Pain Management doctor and an incredible podiatrist (who is quite versed in CRPS) that I must return to PT, since area around the ankle has become "tight" and they want me to avoid atrophy. My gait has definitely been affected during the course of the last 2 + yrs...So I'll be going for 8 wks of PT to see how that may help. Will return to the excellent therapist who attended to my knee and helped me to strengthen it so that I can rise from a chair without moaning. I've called centers within a 20 mile radius of our home and no one has even heard of CRPS, let alone have knowledge of how to provide therapy for it. I do exercises at home that were taught to me from the first 3 therapists.
Again, thank you for sharing. I honestly hope you can find relief. I, too, have had peripheral neuropathy (of unknown etiology) for past 12 or so years.

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Replies to "Thank you for replying and sharing your experience. It's my understanding (from research that I've done)..."

I to have a neuropathy. I had a nerve testing that says right is worst then left. But I feel left is worst then right.
Left ankle the podiatrist says is RA and it feels like a stiff rod through big toe
It sometimes feels like gout at the toe nail
Or infection in nail but only thing docs say is poly neuropathy
Lyrica and gabapentin never helped
Cymbalta Volatran no help
The injection in ankle helped to ease the movement and the second time i has injection the doctor put half in the ankle and half at the toes, (like on top of toes and middle ) it helped the anxious movement
Which that movement started the ankle pain
The fist injection was April And the secon injection was Sept
I would like to get in to a rheumatologist to ask about fructose intolerance issues
Could be causes of the toe feeling like gout
My gout are high normal
I hope I wrote this of making sense
But neuropathy does make sense.
It’s a wait and listen game?

Hello @delia74, It's great to see you already have a response from another new member @doriskay79. I would like to welcome you both to Mayo Clinic Connect. I'm sorry to hear you both are having to deal with neuropathy symptoms and hoping others that relate can share their experience.

@delia74 It's great to hear you've found that PT has provided a lot of help. You mentioned having Complex Regional Pain Syndrome (CRPS). You might want to check out some of the other discussions on CRPS. I did a search of Connect and here is a list of the discussions and comments on CRPS that you might find helpful - https://connect.mayoclinic.org/search/?search=CRPS.

@doriskay79 It sounds like you have multiple conditions going on and you are still looking for something that helps. My experience with gout quite a few years ago was painful and I was prescribed colchicine which provided me with pain relief and helped with the swelling. I also have neuropathy but I only have the numbness. One of the best things that helped me was being on Connect and learning as much as I can about neuropathy and what treatment options are available. Here are a couple of great sites for learning more about neuropathy:
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/