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How do you diagnose myasthenia gravis?

Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)

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@brighterday

Hi Sparrow! It's great to hear that you are doing so much better with treatment. I am, especially, happy to hear about your experience with Imuran. You are the first person I have heard from with experience taking this medication. I agree that I need to discuss my concerns with my doctor. I wish I could do that. Unfortunately, he does not seem to know much about them and has repeatedly given me inaccurate information. (I'm, actually, in the process of trying to get in to see a different neurologist, one who specializes in neuromuscular diseases.) In the meantime, I an my own and only have what I can find online. My primary care physician was, somewhat, helpful, but this is not his area of expertise so he was limited in his ability to advise me. All this to say, thank you so much for sharing your experience! This is helpful.

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Replies to "Hi Sparrow! It's great to hear that you are doing so much better with treatment. I..."

That is the best to see a neuromuscular doctor can you check to make sure he has experience with MG. Call his office they can tell you. I started on Imuran at 50 mg once a day. At first you may have some nausea so eat when you take it then later my dose was increased to 100 mg. 50 mg in morning the 50 my at bedtime. Them 150 mg 50 in morning and 100 mg at bedtime. Your labs cbc and chemistry have to be checked periodically. Best of luck with it. Prayers for you.