← Return to PN from low dose b6

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PN from low dose b6

Neuropathy | Last Active: Nov 28, 2023 | Replies (16)

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@domiha

Hi, Ray! Well, I don't know if I'd use the term lucky, but at least you DO have a definite diagnosis of PN. A diagnosis of PN for me will almost be a relief, because in the back of my mind I keep thinking... what if it's MS? OR horrors... ALS? Odds are it is PN that resulted from my spinal stenosis that the laminectomy improved greatly... but this is a leftover. How I would LOVE to have two neurologists. I go for my EMG in the morning. With a little luck, it may be a neurologist who does the test... and if so, I may ask how I can get in to see him/her!! I see that you have issues similar to mine. So far, I don't have a lot of pain .... just numbness and tingling that results in unsteady gait at times. It doesn't stop me from getting out and about to run errands or go for appointments or attend social events. It's an aggravation for me... and I feel for those who have such pain they are unable to walk at all.... or those who have trouble sleeping because of pain. 🙁 Take care! Mike

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Replies to "Hi, Ray! Well, I don't know if I'd use the term lucky, but at least you..."

Hi, Mike! Please let me know how your EMG goes. You have the same thought in mind as I approached mine: I hope it's nothing really, really, REALLY bad! The first words out of my neurologist's mouth after the EMG was concluded were: "I have good news and bad news for you, Ray. The good news is it's not one of those really, really, REALLY bad things. The bad news is that it's idiopathic peripheral neuropathy, 'idiopathic' meaning we have no idea what's caused it." Very true, Mike, it does sound like you and I have identical or near-identical symptoms. Good luck tomorrow! I wish you the best. Cheers! –Ray