I also am on the MG United they have a great support group.

Hi Sparrow! It's great to hear that you are doing so much better with treatment. I am, especially, happy to hear about your experience with Imuran. You are the first person I have heard from with experience taking this medication. I agree that I need to discuss my concerns with my doctor. I wish I could do that. Unfortunately, he does not seem to know much about them and has repeatedly given me inaccurate information. (I'm, actually, in the process of trying to get in to see a different neurologist, one who specializes in neuromuscular diseases.) In the meantime, I an my own and only have what I can find online. My primary care physician was, somewhat, helpful, but this is not his area of expertise so he was limited in his ability to advise me. All this to say, thank you so much for sharing your experience! This is helpful.