← Return to PN from low dose b6

Discussion

PN from low dose b6

Neuropathy | Last Active: Nov 28, 2023 | Replies (16)

Comment receiving replies
@ray666

Hi, Mike. How I ended up with two neurologists was a bit of a fluke. About three years ago, I realized my balance problems were getting worse. A friend asked if I'd seen a neurologist. I hadn't; my PCP had never suggested I see one––so I asked her, and she referred me. I'll call this fellow Neuro #1. Neuro #1's office was in disarray; on every visit, I'd be scheduled to meet with a different MA. (The front desk told me that these MAs––four in all––either had been let go or had found better jobs. I smile remembering: all four had names beginning with the letter "K": Kim, Karen, Katherine, and Kelly.) Without severing ties with Neuro #1, I begged my PCP for another neurologist, perhaps one with a more holistic approach to treating PN. That's how I ended up connecting with Neuro #2, who practices physiatric medicine. It was Neuro #2 who administered my EMG. And it was that EMG––the results––that led to the first time I'd heard anyone say "peripheral neuropathy." So that's me in a nutshell: a guy with two neurologists and a case of idiopathic axonal sensorimotor PN. I'm a lucky guy, ain't I? 😀 ––Ray

Jump to this post


Replies to "Hi, Mike. How I ended up with two neurologists was a bit of a fluke. About..."

Hi, Ray! Well, I don't know if I'd use the term lucky, but at least you DO have a definite diagnosis of PN. A diagnosis of PN for me will almost be a relief, because in the back of my mind I keep thinking... what if it's MS? OR horrors... ALS? Odds are it is PN that resulted from my spinal stenosis that the laminectomy improved greatly... but this is a leftover. How I would LOVE to have two neurologists. I go for my EMG in the morning. With a little luck, it may be a neurologist who does the test... and if so, I may ask how I can get in to see him/her!! I see that you have issues similar to mine. So far, I don't have a lot of pain .... just numbness and tingling that results in unsteady gait at times. It doesn't stop me from getting out and about to run errands or go for appointments or attend social events. It's an aggravation for me... and I feel for those who have such pain they are unable to walk at all.... or those who have trouble sleeping because of pain. 🙁 Take care! Mike