@alju. Hi. After seeing multiple MD's, dentists, etc. over many years it is amazing how few have ever heard of LP. I've had two biopsies over the last 8-10 years but none actually elaborated as to lichen sclerosis, only lichen planus. Two years ago my derm suggested a vulva dermatologist a distance from my home but I was happy to go. She too recommended Amitriptyline. Not sure if it helps the pain but the sleep benefit is wonderful. I have a lump in the vaginal area that I believe the derm called "?milia." I've got scaring there as well and I go back every 4 months or so to, I assume, to make sure no cancers develop.
Also, I've had multiple squamous cancers on my legs and arms (many requiring surgeries) that I'm sure are related to lichen planus.
The sharing this forum provides is amazing. Thanks to all. Faye