William,
I can not answer that. Not a physician and not licensed to practice medicine anywhere in the world.
I have done a dozen + different blood and urine tests at a time. Most had abnormal results.
I can share a list from MyChart if it helps:
- ARUP Misc Test, Blood
- Metanephrines Fractionated, Blood
- TSH, Blood
- Chromogranin A, Blood
- Differential, Blood

Big thing was a genetic test. Something called ZINVITAE. They look first for 14 or something like that mutations, NEC specific. Google SDH mutations, A, B, C, D, and AF2. If you have SDHB mutation for example, there is 40 - 50% chance you will develop a PG or PH (Paraganglioma or Pheochromocytoma).

Can you confirm you are a real person? I do not like talking to ChatGPT bots and mods. Thank you.

Hello @willam,

Here is a list of some of the tests (from the Carcinoid Cancer Foundation website) that are used in helping to diagnose NETs.
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
As you can see, there are blood tests, 24-hour urine tests as well as scans. Your diagnosis usually comes from numerous diagnostic workups.

From what you have posted in the past, it appears that a tumor has not been found. Is my understanding correct?

Hello!
Here are a most common tumor markers:
Chromogranin A
Gastrin
Serotonin
AG-GI 19-9 ( CA 19-9)
CEA Antigen
CRP (C reactive protein)
CA125 ( for my endometrial cancer)