← Return to PN from low dose b6

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PN from low dose b6

Neuropathy | Last Active: Nov 28, 2023 | Replies (16)

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@domiha

Hi, Ray! Thanks for sharing this info. When my B6 levels were checked in September by LabCorp, the number came back at 10... but there was no reference range that I could find. But my PCP commented that my B6 was actually at a "very good" level. As I mentioned before, just like you I "think" I'm noticing some change since starting the Metanx a month ago... but also like you, I wonder if it could just be wishful thinking on my part. I still have the tingling and numbness.... but it "seems" to be to a lesser degree. (hard to explain) I don't expect this to ever go away completely based on all I have read... but any improvement will be welcomed!
How fortunate you are to be seeing TWO neurologists! My PCP referred me to a neurologist mid-September.... and I have yet to get an appointment, even though I have called numerous times. šŸ™ And neurologists in my area are in limited supply. My podiatrist recently did a skin biopsy and she has referred me for an EMG that will be done tomorrow. I see her again in a few weeks to get all the results... and hopefully a diagnosis. The ortho spine doctor who did my surgery has had me try some meds, but they haven't helped. But there has actually been no definitive diagnosis as of yet. Bravo to you for having two separate neurologists to see, as one may catch something the other does not! Best wishes... and I hope you are right about the positive changes from the EB-N5!! 🙂 Mike

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Replies to "Hi, Ray! Thanks for sharing this info. When my B6 levels were checked in September by..."

Hi, Mike. How I ended up with two neurologists was a bit of a fluke. About three years ago, I realized my balance problems were getting worse. A friend asked if I'd seen a neurologist. I hadn't; my PCP had never suggested I see oneā€“ā€“so I asked her, and she referred me. I'll call this fellow Neuro #1. Neuro #1's office was in disarray; on every visit, I'd be scheduled to meet with a different MA. (The front desk told me that these MAsā€“ā€“four in allā€“ā€“either had been let go or had found better jobs. I smile remembering: all four had names beginning with the letter "K": Kim, Karen, Katherine, and Kelly.) Without severing ties with Neuro #1, I begged my PCP for another neurologist, perhaps one with a more holistic approach to treating PN. That's how I ended up connecting with Neuro #2, who practices physiatric medicine. It was Neuro #2 who administered my EMG. And it was that EMGā€“ā€“the resultsā€“ā€“that led to the first time I'd heard anyone say "peripheral neuropathy." So that's me in a nutshell: a guy with two neurologists and a case of idiopathic axonal sensorimotor PN. I'm a lucky guy, ain't I? šŸ˜€ ā€“ā€“Ray