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Small Fiber Neuropathy

Neuropathy | Last Active: Dec 2, 2023 | Replies (18)

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@exitframeleft

@rnlorena I also have Idiopathic Non-Length Dependent Small Fiber Neuropathy. I was diagnosed about 2 years ago. My symptoms are burning pain, tingling, numbness in both feet (worse in my right). It is quite frustrating doing all of the testing only to find out that they don't know the cause. I also have Crohn's disease which is an autoimmune disease and I feel like it is the underlying culprit. I hope you find some answers. You definitely need a Neurologist you can trust and who listens to you. Same goes for your Gastroenterologist

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Replies to "@rnlorena I also have Idiopathic Non-Length Dependent Small Fiber Neuropathy. I was diagnosed about 2 years..."

I appreciate your reply. I find it somewhat difficult lately to trust certain Doctors who I have seen lately. I will be visiting my eye Dr. who is an Ophthalmologist and he used to be a Neurologist. When I saw him after I had pinpricks in my eyes he did not want to talk neuro. He asked me on my last visit if I would get my neurology records and bring them to him. I did. I will have questions for him in February on my visit. I had changes in my eyes. I visited my brother in Texas back a bit ago. I walked out on his porch at night and he asked me to look up at the sky. He said look at the quarter moon and Venus was above it. He is interested in things like that. When I looked up I saw a bunch of quarter moons and they were different colors. I was looking at the lights on houses and I noticed some things with that also. It happened just like that suddenly. I told my brother what I saw and asked him if he saw it too. I thought it was an anomaly. He said no. Things have been bizarre lately. I wonder what exactly the eye Dr. will say. Because I know that sometime in the future I will need cataract surgery. Yet he doesn't want to talk about neurology. I get it some but I wonder If he would touch my eyes if I have pinpricks. We will see. I will keep asking questions and keep researching and I will not ever give up. I can be a very determined woman when I want to be.