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← Return to PN from low dose b6
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Hi, Mike
Insanely, perhaps, I see two different neurologists in two different clinics, miles apart. The one neurologist is the one who suggested I try the EB-N5, and who consulted with about my B6 concerns, putting my concerns to rest. Then a few weeks ago, I had a routine follow-up with the other neurologist and, naturally, I brought up the question of B6 and toxicity. She ordered fresh labs.
(By the way, each neurologist knows I see the other; they're friendly colleagues.)
The labs came back showing my B6 as HIGH: 99.4 against a reference range of 3.4–65.2. With the blessing of both doctors, I'm currently doing a six-week "experiment": cutting my daily EB-N5 dosage in half, after which I'll get more labs.
A side note to all this: I'm five months into using EB-N5. Recently, my PN symptoms "seem" to have lessened. Have they? Or is it just wishful thinking? My mentioning this here is the first and only time I've mentioned it. I'm not telling friends, not even my partner, for fear of jinxing a good thing. 😀
Ray
Replies to "Hi, Mike Insanely, perhaps, I see two different neurologists in two different clinics, miles apart. The..."
Hi, Ray! Thanks for sharing this info. When my B6 levels were checked in September by LabCorp, the number came back at 10... but there was no reference range that I could find. But my PCP commented that my B6 was actually at a "very good" level. As I mentioned before, just like you I "think" I'm noticing some change since starting the Metanx a month ago... but also like you, I wonder if it could just be wishful thinking on my part. I still have the tingling and numbness.... but it "seems" to be to a lesser degree. (hard to explain) I don't expect this to ever go away completely based on all I have read... but any improvement will be welcomed!
How fortunate you are to be seeing TWO neurologists! My PCP referred me to a neurologist mid-September.... and I have yet to get an appointment, even though I have called numerous times. 🙁 And neurologists in my area are in limited supply. My podiatrist recently did a skin biopsy and she has referred me for an EMG that will be done tomorrow. I see her again in a few weeks to get all the results... and hopefully a diagnosis. The ortho spine doctor who did my surgery has had me try some meds, but they haven't helped. But there has actually been no definitive diagnosis as of yet. Bravo to you for having two separate neurologists to see, as one may catch something the other does not! Best wishes... and I hope you are right about the positive changes from the EB-N5!! 🙂 Mike
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Ray, I'm so hoping it is working!! Best wishes for healing