Good morning everyone! I am just finding this group. I am at Mayo Florida with my father who was diagnosed with Micropapillary Bladder Cancer October 20, 2023 in Cumming GA when they thought the biopsy they were taking was going to show locally invasive prostate cancer… all that to say the biopsy wasn’t done as guidelines recommend for bladder cancer, nor has his cancer otherwise been properly staged. Today is a big day as we will be meeting with Dr Lyon, urologist, who is capable of major bladder removal surgeries assuming that is still what needs to be done. The only reason we are here instead of with the team in Georgia where my parents live, is that they couldn’t get to his surgery until December 11 anyways… or to an oncologist (Emory - Dr Bilen) that was remotely familiar with this rare cancer, until November 28. Blessings to all.