Hi @baa
I have made my comments in your other post.
One thing that I might not have mentioned yet, being treated by an epileptologist instead of just a neurologist has made a great difference in my treatment of epilepsy. Epilepsy is a complex condition that requires a neurologist who is specialized in it.
As @tonyde has well mentioned, do your own research and do not be afraid to quiz your doctor. Studying epilepsy and understanding epilepsy has been fundamental to getting well again. The Epilepsy Foundation has great material, it has been my school.
Do not give up! I have been there where you are right now in 2019-2021 and through persistence and help from good professionals, I got well again.
Chris (Santosha)