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Newly diagnosed and confused over treatment for lichen sclerosus

Autoimmune Diseases | Last Active: Nov 3 6:50pm | Replies (33)
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@ma31302

On this note, I'm newly diagnosed myself and completely lost. I have 0.1 steroid ointment once a day for 2 weeks and then drop it down to twice a week. The architecture changes to my vulva already happened. I am devastated and don't know what specialist to help with my condition.

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Replies to "On this note, I'm newly diagnosed myself and completely lost. I have 0.1 steroid ointment once..."
Becky, Volunteer Mentor | @becsbuddy | Nov 28, 2023

@ma31302 Welcome to Mayo Clinic Connect. This is a very caring and informative group so I’m glad you found it! I’m so sorry about the lichen sclerosis and the changes it has caused you. What type doctor is helping you? Most members would recommend a good gynecologist. They can probably point you toward a specialist who could help you.
Is the steroid ointment helping you with other symptoms?

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Becky, Volunteer Mentor | @becsbuddy | Nov 29, 2023

@ma31302 I found this yesterday and I thought you might find it helpful. One of my sisters sent it to me (they both have autoimmune conditions). It’s a very long article so I singled out the sections on lichen sclerosis. Tap on the photo to enlarge it.
Do you think it might help?
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