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Lichen Sclerosus: Any other women dealing with this disease?

Autoimmune Diseases | Last Active: Jun 14 8:00am | Replies (289)
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@alju

She was fairly silent about it but prescribed Amitrityline for pain. I actually wanted her to do a biopsy ( which she refused to do) since she is composed, self assured , and consertative unlike the obgyn who is an unpleasantly aggressive investigator, if you take my meaning. I'm seeing my GP tomorrow to give her an update and see if she has any thoughts on the next step. So onward
I march. I hope sometime very soon progress toward some solution is in sight.

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Replies to "She was fairly silent about it but prescribed Amitrityline for pain. I actually wanted her to..."
fdixon63 | @fdixon63 | Nov 28, 2023

@alju. Hi. After seeing multiple MD's, dentists, etc. over many years it is amazing how few have ever heard of LP. I've had two biopsies over the last 8-10 years but none actually elaborated as to lichen sclerosis, only lichen planus. Two years ago my derm suggested a vulva dermatologist a distance from my home but I was happy to go. She too recommended Amitriptyline. Not sure if it helps the pain but the sleep benefit is wonderful. I have a lump in the vaginal area that I believe the derm called "?milia." I've got scaring there as well and I go back every 4 months or so to, I assume, to make sure no cancers develop.
Also, I've had multiple squamous cancers on my legs and arms (many requiring surgeries) that I'm sure are related to lichen planus.
The sharing this forum provides is amazing. Thanks to all. Faye

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