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Phage Therapy ( alternative of antibiotics) for MAC lung infection
MAC & Bronchiectasis | Last Active: Dec 13, 2023 | Replies (22)Comment receiving replies
Mary, I have bronchiectasis, had pseudomonas and NTM. I was treated for almost 2 years, but the NTM cultures were never negative. I stopped the 3 antibiotics in December 2019 and have relied on airway clearance with saline ever since. So far, I am maintaining and the bronchiectasis is "stable".
Are you being treated for NTM?
Sue
Replies to "Mary, I have bronchiectasis, had pseudomonas and NTM. I was treated for almost 2 years, but..."
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My story is similar to yours. I was diagnosed in 2013. Did the Big 3 for 18 months and got hearing loss and tinnitis. I cleared the MAI but within the year got MAC. I refused further antibiotic treatment since the 'cure' was as bad as the disease and it could always come back. After reading online about nebulizing saline, I asked my pulmonologist about it and he let me try it. He could have suggested it years earlier! My bronchiectasis progressed steadily and I got several other strains of NTM, plus serratia and Hafnia, but still refused abx. I think the saline has kept infections tamped down - as well as serious lung clearence - which again, I learned about online. The Facebook page Lung Matters is incredibly helpful. I know things are progressing, but I am hopeful that I can avoid surgery (NJH wants to remove a lobe and put me on abx for a couple of years). Phages offer hope as well as nitric oxide therapy, Arina, and other treatments in trials now. Fingers crossed!