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DiscussionFound PNET on tail of pancreas but told it’s nonfunctional
Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)Comment receiving replies
Replies to "Hello @tinerobison, As it has been a while since you last posted, I'm wondering how your..."
Sorry it’s been a crazy few weeks. We still have no resolution! We can’t seem to find a doctor to help us. We are gonna go and have a prunuvo scan the same scan Maria Menounos had. We're hoping we can get more concrete measurements and maybe they can direct us to a physician who wants to help him. He also is scheduled for a nerve block. I totally believe this tumor is pressing on a nerve and highly skilled physicians are not thinking outside typical signs and symptoms. My husband’s diarrhea has gotten worse but we don’t know who to see to get help. Hopkins and Mayo were no help to us.