← Return to Found PNET on tail of pancreas but told it’s nonfunctional

Discussion

Found PNET on tail of pancreas but told it’s nonfunctional

Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)
Comment receiving replies
@hopeful33250

Hello @jenniferrasigade and welcome to the NETs support on Mayo Connect. I am sorry to hear about your pain and flushing. I see that you have pancreatitis. Since you posted in the NETs group, I'm wondering if you have been diagnosed with NETs as well?

I look forward to hearing from you again as you share your health journey.

Jump to this post

Replies to "Hello @jenniferrasigade and welcome to the NETs support on Mayo Connect. I am sorry to hear..."
jenniferrasigade | @jenniferrasigade | Nov 27, 2023

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3 cm in the pancreatic neck and a BD-IPMN on the tail. I will have a distal pancreatectomy at the beginning of the year. I’m waiting so that I can give my kids a worry free Xmas. My girls are my life. Hopefully, this will be curative. My surgeon and tumor board decided to take the tumor because of a 9 mm lesion that appeared on my liver. My oncologist believes it’s nothing but my surgeon says we need to biopsy and get rid of it. So here I am.

VIEW AND REPLY