← Return to Chemo delayed for clinical trial

Discussion

Chemo delayed for clinical trial

Breast Cancer | Last Active: Dec 1, 2023 | Replies (8)
Comment receiving replies
@kayanonsen

Hi, yes that is right, and thanks for your understanding. I really felt it was an awful experience, as though I don't matter, as though I am "female patient, 67, left breast cancer" which is how I'm referred to on the patient portal.... so I'm still waiting for an appointment to start chemo, then lumpectomy, then radiation.
Kay

Jump to this post

Replies to "Hi, yes that is right, and thanks for your understanding. I really felt it was an..."
eku | @eku | Nov 28, 2023

@kayanonsen
I am sorry about what happened to you. One should never be enrolled in a clinical trial without their consent. The clinical trial should be very carefully explained to you (pros/cons, how it compares vs your current treatment plan, etc.) and you should be allowed to think about it and ask questions.
Clinics usually send an email or text message asking you to evaluate your last visit with them. If you receive one, please use it as a means to give feedback, be clear on what you did not like and include how you would rather like it to be handled.
I wish you ease in your treatment and a complete recovery.

VIEW AND REPLY