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Chimerism Test Results Post Stem Cell Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 21 9:47am | Replies (8)Comment receiving replies
Hi Lori, We so agree that going through and recovering from an SCT is not for sissies...never has there ever been a more true sentiment. A sense of humor is a huge plus!
Mark went to PT at Mayo Scottsdale for 5 sessions before we came home to Las Vegas, then had several sessions here to get his muscles to continue to move again. It took about 5 weeks at home sleeping in a lift recliner downstairs, doing PT, walking around the block, and eating as healthy as he could to be able to start walking upstairs again. Sleeping in our bed and stretched out really accelerated his recovery! He continues to do PT at home several times a week.
He is taking in more water these days so that is great. He is still on .5 mg Tacro twice a day. We have thought about getting a massage but he is reluctant due to how quickly he bruises with even the slightest bump.
You are very appreciated, Lori, for your valuable experience! Hope you had a great Thanksgiving! Jamie and Mark
Replies to "Hi Lori, We so agree that going through and recovering from an SCT is not for..."
Good morning, Jamie and Mark. Just wanted to stop by to see how Mark is doing now that he’s several months post transplant. Hope all is going well and life is resuming to normal! Any GVHD issues?
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Hi Jamie and Mark, Thank you, I (we) did have a wonderful Thanksgiving. Our daughter and son-in-law flew down to spend a week with us while we’re in Florida. They came last year too and told us it would be the new annual tradition. They meant it! LOL. They even booked tickets in August so there wouldn’t be an issue getting a seat. It’s occasions like this that really drive home the enormous gift and second chance with life that I’ve been given. Makes up for all the challenges and obstacles it took to get to this point. ☺️ Hang in there, Mark, things get better!
I’m happy to hear about the improvements after the PT. Though a massage would be beneficial I can understand the reluctance at this time with the easy bruising. Give it a little more time. You can mention to your massage therapist that you need to avoid deep tissue massage. They can still do quite a bit for lymph drainage without being overzealous with the massage.
How often do you have follow-ups at Mayo?