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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Aug 24 6:34am | Replies (162)

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@johnbishop

Hello @rayabw, You will notice that we moved your post into an existing discussion on the same topic here. If you click the link below it will take you to the beginning of the discussion where you can read what others have shared about Kevzara:
--- Kevzara (sarilumab) to treat PMR: https://connect.mayoclinic.org/discussion/kevzara-sarilumab-to-treat-pmr/

You may also want to take a peek at the following related discussion:
--- Starting treatment with Kevzara: My journey: https://connect.mayoclinic.org/discussion/first-dose-of-kevzara/

It sounds like you have had a long struggle with PMR. Do you keep a daily pain log and dosage to track your symptoms?

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Replies to "Hello @rayabw, You will notice that we moved your post into an existing discussion on the..."

Hi, interesting that you mention keeping a pain and dose log. I started doing this from day 1 of the Prednisone journey. It has helped me to understand the diet, stress, dose, pain connections and i found producing a graphic representation in excel of the dose changes and duration during tapering was also enlightening. This was how i realized that dose changes of more than 2mg could result in withdrawal symptoms for me, that splitting the dose and having a small amount in the afternoon meant a better nights sleep and less morning stiffness. I also realised that red meat definitely caused more pain, that 3 months of the strict vegan diet wasnt causing less pain and that days where i was stressed from looking after triplet 4yr olds resulted in a flare of pain symptoms !!!