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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 9:39am | Replies (128)

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@marilynredder2367

Taping too fast will keep you sick longer with relapses. I had to do . 05 for more than a month. It was so slow. Otherwise I got sick and was in pain. I fought with my rheumatologist and ended up tapering myself. Similar situation with GCA. Don’t worry about GCA. If it happens you will deal with it. Another website you will get very good help is HealthUnlocked. They originated in England. Europe has more PMR & GCA than the US or Canada. The disease originated in the Scandinavian countries. They migrated to Europe mostly. Hope this helps.

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Replies to "Taping too fast will keep you sick longer with relapses. I had to do . 05..."

Thanks -- this is helpful! I'll try a 0.5 mg taper if my current session of 1 mg taper doesn't work again. I got some 1 mg tablets from the pharmacist last time I renewed the prescription so it will be much easier to break them into 0.5 or 0.25 mg pieces if need be. My doctor is going by the textbook tapering schedule, which is start with 15 mg (for PMR) then taper down to 12.5 mg over a month, and then 10 mg over a month. But that seems to be way too quick for most patients, including me. I have already joined HealthUnlocked -- thanks! My mother's family came from northern England, and we also have Scottish, Welsh, and possibly a trace of Norwegian blood (according to my sister's DNA test and research on Ancestry.ca). So I assume this is where the PMR has come from, although I don't recall my grandmother, aunt or mother having the disorder. They all had osteoporosis in their later years, however, so that's another huge concern of mine, especially with taking the Prednisone. I was diagnosed with osteoporosis some years ago, but have started taking a bisphosphonate medication, thankfully with no side effects so far.

I agree info from Europe can be very helpful. Thanks for sharing HealthUnlocked. I'll check it out.