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Lichen Sclerosus: Any other women dealing with this disease?

Autoimmune Diseases | Last Active: Nov 12 9:01am | Replies (323)
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@alju

I have seen 2 ob/gyns and a dermatologist . I rejected the ob/gyn biopsy offers, the idea of any further added pain was too much to consider. But I may have to reconsider since there has been no improvement. Both gyns said that the steroids would NOT cause the bumps or lesions that have appeared and gotten worse. However, I've read the common side effects of one of the steriods are blisters, pimples, redness, itching, acne, just to name a few. Estrace cream has it's list of side effects too. So I am doubly frustrated thinking that they are both mistaken or just reluctant of admit such a possibility. I really don't know where to turn at this point.

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Replies to "I have seen 2 ob/gyns and a dermatologist . I rejected the ob/gyn biopsy offers, the..."
Becky, Volunteer Mentor | @becsbuddy | Nov 26, 2023

@alju “you don’t know where to turn.” It sounds like the doctors were giving you good advice but you were just too worried and upset to hear them. A biopsy would be a good idea. How can the docs know what to treat unless they can really see it. Every woman who goes into their office is afraid. So just tell them that you are, too. They can probably give you some numbing cream to make it easier.
Any good medicine comes with side effects. Many of the side effects are experienced by only a few people. I was really worried about 1 side effect of an osteoporosis drug. My endocrinologist said that I had more chance of being hit by lightening than getting the side effect. So I listened to her, took the medicine, and have never had a problem!
You’ve seen a dermatologist. What did they say about the bumps and lesions?

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