Thank you for replying and sharing your experience.
It's my understanding (from research that I've done) that my situation of Complex Regional Pain Syndrome has no "cure" and that basically I'm doomed to continue suffering with the 24/7 Pain Level 5 to 6 DAILY, but can reach 8 to 9 ou of 10. CONSTANT burning nerve pain that has affected my life negatively. Physically, emotionally, psychologically....All resulting from a horrid fall onto a concrete floor that traumatized my entire body but most specifically my ENTIRE left side from foot, leg (and knee), thigh, whole arm and shoulder...All areas have healed to a large degree, via OT and PT, but meniscus tear in knee and the damage to the ankle still affect me constantly. Yes, nerve damage exists. There's so much more, but suffice it to say that I am depressed over the fact that there is not much offered in the way of relief. I do NOT want injections in my spine since I have serious problems with the entire spine, a bulge in the sacral area and osteoarthritis. Lots of fun!
Tens has not been effective. I was told by Pain Management doctor and an incredible podiatrist (who is quite versed in CRPS) that I must return to PT, since area around the ankle has become "tight" and they want me to avoid atrophy. My gait has definitely been affected during the course of the last 2 + yrs...So I'll be going for 8 wks of PT to see how that may help. Will return to the excellent therapist who attended to my knee and helped me to strengthen it so that I can rise from a chair without moaning. I've called centers within a 20 mile radius of our home and no one has even heard of CRPS, let alone have knowledge of how to provide therapy for it. I do exercises at home that were taught to me from the first 3 therapists.
Again, thank you for sharing. I honestly hope you can find relief. I, too, have had peripheral neuropathy (of unknown etiology) for past 12 or so years.