← Return to Evenity pain

Discussion

Evenity pain

Osteoporosis & Bone Health | Last Active: Dec 6, 2023 | Replies (61)

Comment receiving replies
@laverne23

Has anyone had painful pins and needles on the left side of their face and into the scalp after Evenity injections? Was your cheekbone really tender? This happened very slightly after my second injection (I thought it might be sinus issues). After my third injection, it happened again but was 100 times worse and the pain was excruciating!

Jump to this post


Replies to "Has anyone had painful pins and needles on the left side of their face and into..."

Laverne, I don't have experience with Evenity. But, my canvas reading hasn't unveiled anyone with these symptoms. The clinical trials signaled joint pain, and sinus issues. So it could be swelling in the mandibular joint triggering the nerves of the face and scalp.
They are finding patients with osteonecrosis of the jaw (and/or hip). You might want to talk to your provider.
You've had the third shot, so from my reading you've gotten the best out of the drug. The second nine months are said to be primarily antiresorptive. You could consider making the third shot your last shot but then you'd have decision again-- what to take.
My bias with these drugs is that we shouldn't tolerate side effects. We all want to be brave and it is brave, but is it wise?
I apologize for this inexperienced answer. But sometimes an answer triggers real responses.

My oncologist's office shared this when I asked about Evenity comparability.

Adverse Reactions

>10%:
Neuromuscular & skeletal: Arthralgia (8% to 13%)

1% to 10%:
Cardiovascular: Cardiac disorder (2%), peripheral edema (2%)
Central nervous system: Headache (5% to 7%), insomnia (2%), paresthesia (1%)
Dermatologic: Skin rash (1%)
Hypersensitivity: Hypersensitivity reaction (7%)
Local: Injection site reaction (5%), pain at injection site (2%), erythema at injection site (1%)
Neuromuscular & skeletal: Muscle spasm (3% to 5%), asthenia (3%), neck pain (2%)

Hello @laverne23. I moved your discussion and combined it with an ongoing discussion on Evenity Pain, https://connect.mayoclinic.org/discussion/evenity-paain/, so the members discussing their varying issues with pain after evenity could see your post to share their experiences.

@laverne23, have you discussed these symptoms with your provider? Did they have any opinions on why it may be causing this pain for you?