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Invasive ductal carcinoma, what should I expect?

Breast Cancer | Last Active: Dec 5, 2023 | Replies (28)

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@mulkey518

This is Mulkey 518 -- when I was first dignosed with my first cancer I had 3 lumps which were hard to find and I complained for 2009 til 2014 when they finally found the lumps. My surgeon told me that they will do a Lumpectomy (May 2014) and 6 weeks of radiation along with an AI pill. I told my Surgeon on several ocassions that I wanted to have my breast totally removed. I was talked out of the Masectomy and into the Lumpectomy with radiation and the Ai pill. Well I had pain from the Lumpectomy from 2014 til they found the 2nd breast cancer on April 2023 (fro 9 years I had been constantly complaining of pain with each Mammogram and Ultrasound performed). Now this breast cancer is Angiosarcoma (bad news all around). So in my research I found that it was standard several years ago to do a Lumpectomy with 6 weeks of radiation and the AI pill (I took femora with no problem for 5 years) for low stage cancer, BUT IT HAS NOW BEEN FOUND that this isn't the thing to do anymore. Now it is stuggested that a Masectomy be performed instead of the Lumpectomy - no radiation - and the AI pill (what ever one your Medical Onclogist suggests). I do regret that I did not stand up to getting my breast remove the very first time - and I would not have gone through with the radiation - but would have taken the AI pill. The Study on this came out in July 2014. So I got radiation cancer in my blood vessels from taking radiation treatment with my first breast cancer. I am not trying to scare you but just know what the current protocol is now. So far I know of 3 people who have gotten this radiation cancer. It is Rare and Agressive and scary and I can not find any Trials or Studies on this Angiosarcoma. Do your research - read for yourself - There are 7 out of 100,000 people who could get this radiation cancer. I wish you well and success in your treatments. But also remember that the "Dumb Question" is the one not asked.

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Replies to "This is Mulkey 518 -- when I was first dignosed with my first cancer I had..."

To: Mulkey . Thank your for sharing this important information. Five years for a diagnosis is a long time. Sometimes the patient has better instincts than the doctor's science. I am sorry that happened to you.