@willam, you are in good with NETs specialists at Mayo Clinic. Clearly, your situation is frustrating and, as yet, unresolved. As you likely know, NETs is notoriously challenging to diagnose. I'm a bit confused by the conflicting results of initial tests indicating aggressive neuroendocrine cancer and followup NET-specific diagnostic test indicating everything is normal.

Have you been diagnosed with GI NETs? Have other conditions been ruled out that may be causing the GI issues?