Dear All,

Thank you for this support group! My name is Krisztina, I am a violinist and I have a 2 year old daughter. I joined this group because I think it would be a great place to share my concerns, challenges with fellow neuropathy patients, because you have better insights, knowledge and empathy than anyone else.
I have a rare hereditary neuropathy, called HSAN Type 1A. I was diagnosed 2020. I don’t feel temperature, touch or pain in my legs knee down, only squeezing and vibration. I do have some “phantom” nerve pain, like electrical shock, but it is not so bad that I would need painkillers. I also have foot drop, so I am unable to flex my ankles, I need braces for safe walking. This year is particularly challenging as I broke my left foot in March as I didn’t lift my foot high enough and caught up in the floor. 2nd,3rd and 4th metatarsals.Then in May I broke the left big toe. No accident, no known injury. It didn’t heal yet, but one of the doctor I have seen said I can just start walk again without the cast boot. 2 weeks ago I broke the 2nd and 3rd metatarsals again in a different place. I am just about to solve this puzzle that probably my bones got too weak from being in the boot, that they can break very easily. Is there anyone out there went through something similar? Perhaps you have some tips how to start walking and do activities again safely? I do take D3 5000i and also Calcium 1000mg, also trying to take in calcium in food form. I would like to hike again, doing yoga again without braking any bones.