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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@casd57

I've had it since the first of the year... At that time I held off going to the Doc til February... He offers Gabapentin..I didn't like and it didn't help it so he switched me to Pregabalin..by the time and dosage it helped it made me goofy and not sure-footed... So I got off the Meds.
At this time I could only mow half my lawn at a time and I would have to go lay down because my feet hurt so bad I'd almost go to tears
Also at this time, I could hardly go to work..I was starting to worry about my job...
I did a bunch of research and came up with this:
Take this daily:
R-ALA 600mg
B1 Benfotiamine 300-600mg
B6 Pyridoxal-5-Phosphate (No HCL types) 80-100mg
B9 5-Methytetrahyofolate 400 mcg
B12 Methylcobalamin 1000-3000mg
L-Citrulline 1000mg
Acetyl-L-Carnitine 1000-3000mg
NO Fillers in the pills like:
magnesium Stearate
Gelatin
Maltodextrin
Dyes-Colorings
Titanium Dioxide
I also have one of those feet shockers... I've gone through two of those cheap $20 ones...they work great at first and then they barely work.. I think the wiring is fragile and easily broken
So I'm looking for a better one because I think it helps with the pain....

After taking this combination for a few months... my feet are a lot better...I still have pain but it is manageable...
In fact, we just went to Disney World, Epcot, and Universal and we walked 8-10 miles a day
I have a Google smartwatch so here is what I have found.... at about 1500 steps it starts hurting..by 5000 steps I need to take small breaks and then it's fine for a while but at 5000 is the peak of the pain.
Small 5-10 breaks and my feet are ready to go...
Also, I play guitar.........I can feel it in my hands also ..so it's not just my feet but my hands(mainly fretting hand) are very minor pain

As usual...this might not work for everyone...We are all different but I hope it helps some people with healing your nerves and is a very...very...slow process, so don't expect overnight relief

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Replies to "I've had it since the first of the year... At that time I held off going..."

I can only walk a few steps. I do exercise on the bike and do tai chi and other things. I used to bike outside and walk but now I am frustrated since I am no longer able and feel stuck in this body. No I don't have friends or family to be with me. Yes, I pay someone to walk my little dog and I go with hm. People are nasty to me as I try to explain and they don't like my attitude at all.