Hi there, I have been dealing with polyneuropathy and MGUS for over 20 years and just got a diagnosis of DADS-M about a week ago. I too have chronic, to the point of being disabling, back pain, along with the painful neuropathy. I am in the US and just waiting on insurance approval to start IVIG and Rituximab. Based on the existing literature about this disorder, which is scant, I am not expecting much improvement, but there is a 100% chance I won’t improve if I do nothing. I’ll let you know how it goes.