Can Tymlos cause hip pain?

Posted by bdk1110 @bdk1110, Nov 24, 2023

In November 2022, my husband had a cage with rods and screws put around his spine from his T-9 to his S2, including illiac screws into his pelvis. His neurosurgeon initially said the hip pain that he complained about was caused from the illiac screws and would subside within a year.

At the same time, his neurosurgeon referred him to an endocrinologist, who ran a multitude of tests and determined my husband was pre osteopenia as well as severely low in testosterone. He began Tymlos injections in the spring of 2023, six months post back surgery. He was still having post surgical pain at the time. The endocrinologist prescribed Tymlos 80 mcg (8 clicks). Shortly thereafter, his hip pain began to get worse and is now debilitating.

With his increased hip pain, he contacted his neurosurgeon, who ordered an MRI and other regular xrays of his back and hips. The results showed no diagnostic issues that would be causing such pain.

He was then referred to an orthopedic doctor for hip joint evaluation. While he does have some mild arthritis, the orthopedic doctor said the ball and joint of both hips are in really good condition. He doesn't believe the pain is related to any degeneration in the hip joints. His neurosurgeon is now considering a myleogram as a next step.

With both doctors not being able to determine the cause of his hip pain, I am now questioning his Tymlos as the root cause.

Has anyone else had a similar experience? Since hip pain is not listed as a side effect of Tymlos, how can he safely determine if it is the cause of his pain and how would you go about discussing it with his three doctors? It seems that no one has given thought to his medication as being at the root.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Joint pain was signaled in the clinical trials for Tymlos. Tymlos was a good choice for your husband even with osteopenia because of the way it has been determined to aid in the integration of medical hardware.
There are different kinds of imaging MRI has difficulty imaging the interface of the implant, in general because of metal interference.
But first, you might consider stepping away from the Tymlos. You could lower the dose, but my thinking is to stop the drug for a brief period to clarify the effect. If you can, contact the endocrinologist for their advice on what may be the plan.
Some patients develop an allergy to components of the hardware. Beyond the pain, it is important to pursue the cause of his discomfort.
This link outlines some of the difficulties with imaging modalities. It is interesting if not helpful.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7000088/ page 4

REPLY

I’m on Tymlos since mid June and had back pain every day for about three months. 2 doctors said it was due to the Tymlos stimulating my bone marrow. The pain is improving. On this site a number of Forteo and Tymlos users complain of joint pain

REPLY

I'm going to say yes! It does hurt your hips. I've been on it a little over 2 months. I've had X-rays of my hips and nothing is considered wrong with my hips. I had excruciating pain both hips. As long as I am walking I am fine. But just as soon as I stop,sit, try to sleep. The pain is unbearable. I don't want to stop. I need my bones strengthened and the injections the way to go. Going back to pain management to see what they can do for me. SI injection did not help.

REPLY
Please sign in or register to post a reply.