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@mir123

I found treatment to be kind of a leap of faith on my part as no one had any research to offer me. I turned down chemo for personal and co-morbidity reasons. Had surgery, 15 radiation treatment, and am on AI without any problems. I'm alive and feeling ok--ended treatment 6 months ago. My long term prognosis isn't good, but no one knows for sure and I feel fine about my choices. Actually I'm in Hawaii for a month, so really cannot complain! The emotional juggling act has been very difficult, but I rely on what I'm grateful for as well as a philosophical/spiritual approach developed over 70 years of problems, loss, adventure, love, and a huge mix of things. Just a suggestion--bring all your wisdom and self-knowledge to this impossibly confusing situation and I feel positive you can find your way.

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i am so glad I finally found this information! I was diagnosed with Primary NET Breast Cancer a little over year ago. I am told that is treated like regular Breast Cancer. I had a lumpectomy and 20 Radiation treatment. The Oncotype test showed that Chemo wouldn't be very helpful so didn't have to do that. Having Mammos every 6 months now and taking AI for 5-10 years. So far not too bad. Issues with one knee pain but had some of that prior to diagnosis. Still a lot of itching but PET Scan when diagnosed didn't show it any where else. They say I am cancer free currently. Cross fingers.