I'm so sorry your mom is struggling so much with MAC. It must be so difficult for you to see her in pain and losing weight. The suggestion to consult a nutritionist is a good one.

My advice for you, if I may offer it, is to make sure you eat well, get sleep and have time with others . Every river has to have a source, and you can't help your mom if you are not physically and emotionally healthy. I know this is difficult when you feel such anxiety for your mom - I've been there too with my mom's emphysema. I'm wishing you strength and for your mother I pray the Arykace will be effective without debilitating side effects. Hang in there.