← Return to I’m Not Responding to Prednisone and I Need Advice

Discussion

I’m Not Responding to Prednisone and I Need Advice

Polymyalgia Rheumatica (PMR) | Last Active: Nov 24, 2023 | Replies (72)
Comment receiving replies
@cliffg26

Does anyone have advice on tapering? I know it can take a long time. I'm currently taking 60 mg Prednisone per day, and I'm hoping that will be enough. My symptoms are much better, but they may not be totally gone.

I'm going to see my non-specialist doctor next week and plan to ask him to check my Sedimentation Rate. Unless I receive other information I plan to begin tapering if my Sed Rate gets below 20. It was 87 on 9/20. I'll be seeing a Rheumatologist in about a month. Is that a reasonable plan?

Jump to this post

Replies to "Does anyone have advice on tapering? I know it can take a long time. I'm currently..."
John, Volunteer Mentor | @johnbishop | Nov 24, 2023

My rheumatologist always told me to taper only when my pain level was gone or at a low level that was acceptable. For me that was generally below a 1 on my pain scale. He also suggested I keep a daily pain log for my pain level when waking up along with the dosage for that day. Do you keep a pain log?

VIEW AND REPLY