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Anyone have neuroendocrine tumor (NETs) of the breast?

Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)
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@pamelasantacruz

Hi! My oncologist says my tumor is breast cancer with neuroendocrine differentiation which is not the same as a neuroendocrine tumor. (Huh?) The plan is to do partial mastectomy followed by radiation. Sending pathology for ONCOTYPE testing which will determine whether or not chemo needed. He was not able to tell me if neuroendocrine traits will drive up my ONCOTYPE score. Surgery 12/7.

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Replies to "Hi! My oncologist says my tumor is breast cancer with neuroendocrine differentiation which is not the..."
Miriam, Volunteer Mentor | @mir123 | Nov 24, 2023

World Health Organization says NET and neuroendocrine differentiation are subtypes of the same thing--NET. It is treated as ordinary breast cancer, but I gather what you have may be more responsive to treatment than plain NET, particularly to radiation. However, not that much is known--I'm not sure there are stats on either separate from regular breast cancer. Best to you going forward.

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