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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)

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@xxiled

I have been looking for this ...information for years....little history, I had a bout of shingles when I was 48 years old, several spots on the side of my neck, didn't know what it was, but I found that antibiotic cream did nothing to heal it....after 3 weeks of severe pain, I finally went to a doctor. She prescribed some pills, told me to take them until gone and come back when all symptoms were gone....I did that and she gave me the first shingles shot.....everything seems fine......fast forward into my 60's...was told to get the NEW shingles shot, shingrix....I got the first shot and was told to return after 6 months, which I did.....less than two weeks after the second shot, in bed one night, I was awakened by, what felt like someone stabbing me in my feet with a 5 inch needle....soon after my feet were on fire, they burn constantly and still have the "stabbing" symptoms at night....I am at present 69 years old, it has been about 4 or 5 years since I had that second shot, my feet, still to this day, hurt so bad that I can barely walk at times.....I am sure the second shot caused all of this but doctors have no clue how to treat it, one doctor prescribed a drug, gabapentin, that made me sick as hell with horrible side affects......since then I have just given up on treatment and am just living with it best I can......If anyone has anything that might treat this condition I would be very greatful....thank you

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Replies to "I have been looking for this ...information for years....little history, I had a bout of shingles..."

Hi @xxiled, Welcome to Connect. Sorry to hear your neuropathy symptoms started after your second shingrix vaccine. Treatments for neuropathy are numerous and don't always help some people so you pretty much need to be your own advocate and learn as much as you can about the treatments that are available and what might help. The Foundation for Peripheral Neuropathy is a good starting place to learn more -- https://www.foundationforpn.org/living-well/.

You mentioned gabapentin made you really sick. Have you thought about any complementary or alternative treatments like those listed on the Foundation for Peripheral Neuropathy's website above?