@buffalogal, I too, struggled with telling my two adult sons. I think it was because I didn’t want to believe my diagnosis, invasive Paget’s disease of the vulva. I did tell them as I felt they needed to know. They were initially upset, rightly so. But they have been very supportive and help where they can. I share as much detail as they are willing to hear. Sometimes, they tell me, Mom, I don’t need to hear this and that is fine. I understand.

I do have a brother who has listened to every detail. People are different. In the end, telling people helps me deal with everything that is happening .

I had a radical vulvectomy in September. The vulva and clitoris were removed along with sentinel lymph nodes on both sides of my groin. I am fortunate that I don’t need to have radiation or chemotherapy at this time.