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First Bite Syndrome after unilateral Carotid Paraganglioma surgery.

Neuroendocrine Tumors (NETs) | Last Active: Dec 8, 2023 | Replies (14)
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@devil4ever

I haven't had the surgery yet I my left jaw is doing the same but I'm not eating it will just start hurting and start doing what u were talking about. I just take ibuprofen and Tylenol but I just discovered my tumor and want surgery done.

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Replies to "I haven't had the surgery yet I my left jaw is doing the same but I'm..."
coachv | @coachv | Nov 24, 2023

Have you have a chance to see how bif the PG (paraganglioma) is? Mine was not terribly big, only 3.1-3.5-3.0cm. Carotid and Vagal. Vagal part we learned during the surgery.
Is you paraganaglioma on the left side as well?
When you get the first bit pain, does your ear pop or feels like you have an ear ache? According to cleveland clinic getting a first bit syndrome without a surgery is rare. Keep looking. Maybe there is something there, it is pushing or Vagus, Superior Larengial, or nerve #11. Maybe even gland behind your lower jaw? I will be looking at anything to help my condition better. Only difference here is I got a two weeks old 6 inches scar from Carotid /Vagal paranglioma and seven lymph nodes being removed.

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