I have Malignant Neuroendocrine Tumors of the Lung and have been in treatment with Sandostatin LAR every 28 days since November 2022. It has helped with my coughing, and the tumors remain the same size. However, the side effects of Sandostatin LAR are significant, and I felt my body needed relief. I conferred with my Oncologist, and while he mentioned this treatment would be continuous, I skipped a dose under his supervision to see whether the side effects would subside. He suspects malabsorption and will treat it accordingly.
The side effects did reduce during the relief, except the constant coughing returned, and shortness of breath escalated. I have since then had two injections, and the side effects resurfaced. Sometimes, I do not know what is worse: the treatment’s side effects or the disease itself. Everyone is different, so what is affecting me may not be affecting anyone else.

I pray for everyone's improvement and strive to manage this journey.

Many Blessings.