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Replies to "I have IBD (collagenous colitis) and EPI and just started Creon this week. Have you tried..."
Digestive Health | Last Active: Nov 23, 2023 | Replies (6)
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Replies to "I have IBD (collagenous colitis) and EPI and just started Creon this week. Have you tried..."
I think I’ve tried everything. I’m staying on an IBS diet minus those things that I can’t eat with the lack of digestive enzymes. I take three 36,000 Creon with each meal and two with each snack. I’ve pretty much been on a FODMAP diet for the past five years. I still cannot digest green vegetables unless they are thick consistency of mush. I would be perfectly happy if I could drink a shake instead of a meal, but for some reason that doesn’t work. My Gastroenterologist says to take the Creon with the meal. My GP says to take the.Creon 30 minutes before the meal. On line, it says do not take the Creon on an empty stomach so that rules out what my GP says. A nurse told me at the hospital. They tell the patients to take two bites of food and then take the Creon. It wasn’t until I went online a few months ago that I found out I could not take in fiber with the Creon it would prevent it from working well. Online it says not to take the digestive enzymes with a lot of liquid at meal time. I’d love to be able to eat soup, but that’s a lot of liquid so I’m just gonna have to try it one day. I’m in physical therapy three days a week to try and get my strength back from breaking my hip and my arm. That means trial and error can only happen on a Friday night. Otherwise, it prevents me from going to physical therapy. Diet depends so heavily on things the Creon or my digestive system doesn’t tolerate. I called the company that makes the Creon and they told me I could drink as much liquid as I wanted to with a meal. And the other questions I had to ask them they referred me back to my doctor and that’s getting me nowhere. Right now I’m keeping my fat under 60 g a day, eating white bread and white rice and canned fruit. I just recently saw online where there is certain fruits, like pears, and peaches and other fruits with stones that have the wrong kind of sugar in them to agree with my IBS problem. Along with the digestive enzymes, I have added Bentyl, Beano, and GasX. Everything was fine for a while until I read that I could eat hard candy, Popsicles, and jellybeans without taking digestive enzymes. I think the jelly bellies did not get digested because I’m back to floating yellow stools. Today’s and I will be eating some green beans and roll. That’s OK. One of my guests can only drink through a straw so they’re a lot of people out there worse than I am. You have a happy Thanksgiving and thank you for replying to me. I think my biggest problem is that no one understands.