Connect
← Return to Sister not diagnosed yet but cognitive and physical challenges
Discussion
Sister not diagnosed yet but cognitive and physical challenges
Caregivers: Dementia | Last Active: Jan 14 11:02am | Replies (28)Comment receiving replies
@lindakbe I know you're frightened for your sister and yourself and your family. And it’s very confusing not to have a diagnosis when you know something is wrong. You have taken your sister to see doctors and are awaiting a neurology appointment. The best that you can do for her while you wait is to make sure she is safe at all times.
And,also, use this time to find adult day care options and programs for adults with dementia where she can be with others and feel comfortable.
And remind yourself that she may not be the sister you remember, but she is your sister and needs your help.
Where in the US do you live? There may be some university hospitals or comprehensive medical centers where you could go for another opinion. Is that of interest to you?
Replies to "@lindakbe I know you're frightened for your sister and yourself and your family. And it’s very..."
Connect
It is a blessing that I am able to have my sister with us all the time.
We have a big old-fashioned family, and she will never be alone again. She will always be able to call out and find a hug close by. I am interested in getting a diagnosis for her because the progressions of some of these conditions might be slowed if the proper care is given soon enough. At least I think so.... the main thing that is worrying me is if the diagnosis is delayed by half a year we will miss windows that could make a big difference . We are right by Mayo Clinic in Rochester, MN. We live in the country, so she is surrounded by nature. We have a balance dog that helps her move more confidently and an emotional support dog, a big guy, that knows sign language and she teaches him every day.
We had a tough childhood and she had to block out a lot of memories. They're starting to surface now and it is so hard to gently answer her questions about why she and I were so afraid of our dad.
Basically, she saved me when we were little and now I seem unable to save her. Just feel so sad about that. She asked, "what happens if I lose all ability to think?" and I said, "Then I'll just hold you closer."
Thank you for listening to me.