Markmark007, I have not been part of this particular conversation, but just now read your comments about expectations for PRRT. I agree with everything you said and confirm that has been my experience. I completed 4 rounds of PRRT (3 were done with half dosage due to some unusual side effects) at Mayo in October 2021. I have had two scans since with the results being “stabilization of disease”. I have another Gallium 68 scheduled in January. In the meantime, I continue to get my Sandostatin LAR injections every 28 days which I will have been on since April 2018. I have some ups and downs, but I basically just go on with my life.
When diagnosed in March 2018, I told my oncologist that I had decided to view this as being similar to a chronic illness you manage. He totally agreed.
The best to you all.